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Author: Isabel Stenzel Byrnes and Anabel Stenzel
Title: The Power of Two: A Twin Triumph Over Cystic Fibrosis
Binding: Hardcover
Size: 9.5 x 6.5 inches
Publisher: University of Missouri Press October 2007
ISBN Book Code: 0826217540 / 9780826217547
Item ID: 191
Page Count: 312
Publisher's List Price: $29.95 --You'll save 10%...Your Price: $26.96.
ABOUT THIS BOOK
For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.
Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.
Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.
The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.
As gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
About the Authors
Isabel Stenzel Byrnes works as a community outreach coordinator, and Anabel Stenzel works as a genetic counselor in pediatric genetics, both at Lucile Packard Children’s Hospital at Stanford in Palo Alto, California.
Availability: Usually ships within 24 hours
Features girl/girl twins as characters. DUBBE2010
Price =
26.96 USD
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